New publication: How does it feel to live with kidney disease?
This is an unusual and rather personal news item: the publication of short article in a medial journal – The Lancet – in which Zoltan Endre, Sophie Harman and I engage the Dialysis Days blog that my wonderful late wife Emma Hutchison kept for a decade.
Emma would be pleased, I think, to see her voice - and three of my photographs of her - out and hopefully read widely. One of the photographs even manages to captures her favourite “lucky shoes.”
This was a big concern for Emma: trying to somehow make people understand how it feels to live with kidney disease and its countless daily challenges. And challenges they were – often of a gargantuan nature, especially during our last few years together.
Big thanks to my wonderful co-conspirators - Zoltan Endre and Sophie Harman - and Lancet editor Joanna Palmer.
The Lancet article is a very short summary of Emma’s blog Dialysis Days, in which kept for a decade. Half of her blog entries are published here. The other half remain unpublished, except for her last one, which I made available here.
Next step is to introduce, edit and annotate all of Emma’s 19 Dialysis Days blog entries - written over a decade - and publish them as a book that draws awareness to kidney disease. I hope to be able to carve out some time next year to work on this.
For now, I hope you find the short summary useful.
